moominmuppet ([personal profile] moominmuppet) wrote2012-01-16 04:49 pm
Entry tags:

Medical WTF griping

*sigh* Having a very weird body day. Read if interested, skip if not. Just me trying to puzzle out strange new symptoms of something or other.


Chad: how are you?
me: Not great, actually. Having a weird mystery symptom I can't figure out that's making me pretty radically uncomfortable and a little nervous.
tightness in my throat and around my neck, and when I breathe deeply.
Chad: Oh, that is frightening
me: It feels almost like the weird effects of the triptans when I take them for a migraine, except that I haven't had any meds like that in days.
Or like when one's been upside down and all the blood is in one's head, and one's throat sort of starts pounding as a result.
Chad: right
me: So it's scary, because it feels sort of cardiovascular, and I doubt that's my healthiest system. But realistically, I don't seem to be suffering from actual shortage of breath -- I was able to hike all over the building at normal pace to get forms signed earlier.
And my lips aren't blue or anything.
But it's been going on non-stop since the middle of the night, bad enough to wake me up feeling a bit strangled.
Chad: nod - I can imagine that is frightening.
me: Sometimes the weird feeling feels like it extends down my chest or my back, so I'm pondering the possibility of weird neurological stuff, a nerve that's getting odd signals in some way or something.
me: But even unmedicated my BP doesn't run higher than 140/90, and I haven't forgotten my BP meds yesterday or today.
In fact, the only meds I've taken today are my antidepressants and my BP meds, significantly after these symptoms started.
Very small amount of thc, much less than usual. That's everything.
A few sips of Dr. Pepper, a couple of smokes, but less than usual.
me: I'm tempted to take an allergy pill to see if it's some sort of allergic reaction to something I haven't identified, but if it's not, and it is cardiovascular in some way, I don't like the idea of adding another stimulant to my system (which most allergy meds are, at least the ones I have with me)
Sorry, just talking it all out. Will probably turn this into a post as well.
Mostly, I'm assuming it's some weird new fibro thing.
Chad: I'm really not sure if I can/should give advice, but if it were me I'd feel nervous about taking any additional medication without being sure.
me: Usually when weird shit happens, I go looking and find I've just discovered another weird comorbidity I didn't know about.
me: Like the costochondritis that made it feel like I was having hellacious chest pains for a few weeks. That was fun.
Chad: :(
me: So I'm not inclined to go running to an ER, since I don't seem to be showing signs of actual serious risk (blue lips or dizziness or anything), but there's always an element of educated guess in that with fibro crap, so it can make me nervous about whether I'm making the right call or missing something totally separate from the fibro just because I'm so used to almost everything being connected to it (since I'm pretty healthy otherwise)
Can't test my BP here, but my pulse is pretty normal, which is good.
me: And like I said earlier, moderate physical activity doesn't seem to make it appreciably worse.
me: So. That's basically what's up with me. Whee!
How's your day going?
me: No prob! I'm making a post about it.
You don't mind if I use the chat log from this do you?
Chad: no that's fine - I'm not sure that I am saying anything useful though.
me: No worries, talking things out with a "sounding board" is often very helpful for me.
So I really appreciate you listening.
me: Back in a few -- want to find a quiet place to unobtrusively test whether lying totally flat makes me feel better or worse. (ah, data collection!)
me: sigh Not much info from that. Lying flat on my back seems to lessen the symptoms a little bit, but not dramatically. It also makes the weird almost-tender, almost-throbby feeling in my throat move higher, to behind my ears.
Chad: nod I can see what you are saying
me: I'm starting to wonder if this is some bizarre-ass migraine.
Chad: Do you have a dr's appointment soon?
I guess it could pass in the meantime. I'm not sure.
me: I have one in March.
If it's not better in a day or so, or if it gets worse, I'll get in to see someone.
Oh, and the deeper the breath I take, the most I feel a weird tight uncomfortable feeling in the back of my throat. And it feels almost odd that I don't have a migraine; there's something that feels almost like I should be having one at the moment with all this other crap going on.

[identity profile] brujah.livejournal.com 2012-01-16 10:16 pm (UTC)(link)
I'm in the school of sooner is better on the doctor in this particular instance, sugar. Better safe than sorry.

Keep us updated and I hope you feel better soon.

Lovelovelove.

[identity profile] moominmuppet.livejournal.com 2012-01-16 10:45 pm (UTC)(link)
Thanks!

[identity profile] krasota.livejournal.com 2012-01-16 11:18 pm (UTC)(link)
Do get it checked out, but also know that this is *exactly* what silent reflux feels like for me. That's how I know I need to modify my diet (or go back to a full dose of my PPIs). If I ignore it for too long, it'll move on into the painful stage.

[identity profile] moominmuppet.livejournal.com 2012-01-16 11:25 pm (UTC)(link)
Thanks; that's really helpful! I do have a lot of symptoms of GERD, but an endoscopy didn't see any signs of it last year, so it's sort of in a holding pattern in terms of treatment.

[identity profile] zeldajean.livejournal.com 2012-01-17 12:06 am (UTC)(link)
I haven't consciously associated this with GERD (which I do have), but I find that if I'm retaining more water than usual (ate a lot of salt or forgot my diuretic) I get a tight feeling in my chest/neck and even lips. I usually notice this first, and then realize that my legs/hands/feet are swollen also. Taking the diuretic (along with lots and lots of water) makes it better for me.

You could try the lots of water (or other no sugar no caffiene drink) to help flush your system. I don't think that would hurt anything if that's not it, other than increased trips to the bathroom. Good luck!

[identity profile] moominmuppet.livejournal.com 2012-01-17 01:55 am (UTC)(link)
Thanks!

[identity profile] rubyelf.livejournal.com 2012-01-17 01:22 am (UTC)(link)
It doesn't necessarily sound like something neurological to me... not that I'm a medical professional or anything.

[identity profile] moominmuppet.livejournal.com 2012-01-17 01:48 am (UTC)(link)
It's finally tapering off, and in doing so, it's feeling more and more like regular reflux. I have a lot of symptoms of that on a regular basis, although an endoscopy last year was negative, so I'm not being treated for it at the moment, and assumed that meant I didn't have it. However, in googling a bit, I have found that Endoscopy-negative reflux disease is totally a thing (thanks, NIH!). Going to try some more of the omeprazole that I still have and see if that settles things down in a week or so. If so, I'll be talking to my doc more about it in March.

I was most nervous that it might be cardiovascular, and the less and less that looked likely, the happier I was. I tend to guess "weird neurological thing" more often than most, just because so many of my fibro weirdnesses have been that sort of thing.

[identity profile] heavenscalyx.livejournal.com 2012-01-17 03:27 am (UTC)(link)
When I have that sensation of pressure in my throat, I can usually alleviate it (in an immediate way) with antacids, because it's usually reflux inflaming tissues. I also find that if I let the pressure go for too long, I end up with weird painful sensations either down the front of my chest (right side) or down my back, and it resolves when I take an antacid or, better, omeprazole.

I can only speak to my own experience of what sounds like a similar symptom. You could experiment with a Tums, which doesn't add much to the polypharmacy load (though don't take it near the same time you take other meds, as it can affect their absorption, unless their labels specifically say that antacids don't affect the absorption).

[identity profile] moominmuppet.livejournal.com 2012-01-17 09:05 pm (UTC)(link)
It seems that Tums and omeprazole really took the last of it out, once I was able to get to them (none at work all day). That makes it look pretty clearly like GERD issues, so I'll be bringing it back up with my doc when I see her in March. Thanks!

[identity profile] anthologie.livejournal.com 2012-01-17 04:33 am (UTC)(link)
I'm new to your LJ, so I'm also new to your health history, but have you had your thyroid checked out?

[identity profile] moominmuppet.livejournal.com 2012-01-17 09:09 pm (UTC)(link)
Very sensible suggestion. I actually have, and my thyroid levels are normal (although I've learned from mactavish that that's not always the be-all end-all), and I have a few small benign thyroid nodules that it's about time to re-ultrasound (thanks for the reminder on that, actually!).

[identity profile] anthologie.livejournal.com 2012-01-17 09:52 pm (UTC)(link)
You're welcome. When my thyroid is acting up (I have Hashimoto's, like [livejournal.com profile] mactavish, it swells a bit and feels tight in the front of my throat. The more "off" it is, the worse it feels. Good luck re-sonogramming. :)